http://www.dementiacentre.com/ en-gb Liverpool Personal Services Society (Inc.) A company limited by guarantee, registered in England and Wales (214077)A charity registered in England and Wales (224469) and in Scotland (SC038925)DISCLAIMERBy using this website you are agreeing to be bound by PSS Terms and Conditions. For the full terms and conditions Click Here steve.murray@nospam.com (Head Admin) steve.murray@nospam.com (Head Admin) Fri, 10 Sep 2010 14:30:29 -0400 Fri, 10 Sep 2010 14:30:29 -0400 http://backend.userland.com/rss e107 (http://e107.org) 60 http://www.dementiacentre.com/images/pssbutton2.png http://www.dementiacentre.com/ 88 31 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php? Thu, 01 Jan 1970 00:00:00 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php? http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*

The number of people with dementia in the UK - now 700,000 - will rise by a million to 1.7m by 2050

• According to estimates, within 2 decades there will be a million people with dementia

• Fewer than one in four of those with dementia are accurately diagnosed

• This year for the first time, there will be more pensioners than children in the UK

• Dementia affects one in five people over 80 years of age and one in 20 aged over 65

At the moment dementia costs Scotland £1.4 billion as 58,000 people there have dementia.

By 2030, the number of Americans with dementia is expected to more than double to 5.2 million, while those 65 and older with Alzheimer's is predicted to grow 50 percent, to 7.7 million.

]]> pam.stopforth@nospam.com (Pam S) Tue, 20 Mar 2007 16:36:54 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* Assistive Technology is the name given to any product or service that enables people to maintain their independence.

Assitive Technology ranges from very small pieces of equipment such as a door sensor to very high-tech solutions such as satelite-based navigation systems that will help to find someone if they are lost.

It is important to consider the following issues when looking for the right device:

• Any technology provided should be based on an individual assessment

• What works for one person may not work for another

• Assistive Technology is most effective when combined with good care

]]> pam.stopforth@nospam.com (Pam S) Wed, 21 Mar 2007 10:18:51 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* Both the person with dementia and their carer may be eligible for some welfare benefits. A person with dementia may be entitled to claim Attendance Allowance (if over 65) or Disability Living Allowance (if under 65). They may also be entitled to exemption from council tax (contact your district council about this). Carers may be entitled to claim Carers Allowance.

The welfare benefits system is complex, and it may be helpful to seek advice when making a claim. Your local Department of Work & Pensions, the Citizens Advice Bureaux, Carers Support Workers or staff from Adult Social Care can all assist with claiming benefits.
]]> pam.stopforth@nospam.com (Pam S) Wed, 21 Mar 2007 10:27:55 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* If you lose mental capacity because of dementia, you will need someone else to manage your legal, financial and health affairs. It is important to take appropriate steps as soon as a diagnosis has been confirmed, to plan for the future. There are a number of ways of making sure that your financial affairs can be managed by someone you trust, including:
Benefits appointee. A carer can be named as the person's appointee so that he/she can legally handle their income from benefits. Contact the Department for Work and Pensions, who will arrange for an officer to come and visit.

Enduring power of attorney (EPA) / Lasting power of attorney (LPA): currently you can make an 'enduring power of attorney', which means a person of your choosing will be able to manage your finances for you. From mid-2007, you will be able to make a 'lasting power of attorney'; this will enable you to choose a person to make decisions regarding your health and welfare, as well as your finances.

Receivership. if you have not made and EPA (or LPA) and you become mentally incapable of managing your financial affairs, it may be necessary to appoint a receiver to manage them. This is done through the court of protection, although if managing your financial affairs consists simply of managing your income from benefits, it may be done by appointeeship. ]]> pam.stopforth@nospam.com (Pam S) Wed, 21 Mar 2007 10:31:29 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Their local authority has a duty to carry out a community care assessment to assess the personns needs and decide which services can be arranged to help meet their needs.

Services can vary from-

• Home care services

• Day care services

• Respite, residential and nursing care

• Equipment and adaptations

The financial situation of the person with dementia will be taken into account and they could be asked to contribute towards the service costs.

]]> pam.stopforth@nospam.com (Pam S) Wed, 21 Mar 2007 10:48:49 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
We never thought about her glasses until we realised she was having difficulty with stairs.

Yes it was the Bi Focal part of the glassess causing her to not be able to judge the distances correctly.

The real problem came with assessing her current level of eyesight to have new glasses made up.

She was unable to read the standard eye test chart as she has lost the ability to read.

Whilst the Optician did supply new glasses does anyone know how he could have measured her requirements?

I never did ask how and maybe should have?]]> faulkner.d@nospam.com (Dave F) Mon, 02 Apr 2007 16:42:23 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* How do I become a host?

If you feel that you would like to volunteer some time being a host in the chat rooms or a moderator of the forums then please contact us.

You can contact us through the chat rooms when a host is online or by sending a personal message through this site to Pam S or by sending an email to information@pss.org.uk giving us a contact name, phone number or email address and we'll get back to you.

]]> baz99@nospam.com (Barry) Tue, 03 Apr 2007 14:31:28 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* baz99@nospam.com (Barry) Wed, 04 Apr 2007 16:08:48 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* Seems to me that services in the North are much better?

Suzanna]]> suzanna.bright@nospam.com (Suzanna) Tue, 17 Apr 2007 22:19:20 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* BBC there are people with Alzheimer's being tagged to keep track of them in a care home.

Does this infringe civil liberties? Are there benefits for the carers? Is it just cost cutting?

]]> baz99@nospam.com (Barry) Thu, 19 Apr 2007 13:18:04 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* What actually is dementia?

By this I mean is it restricted to a particular neurological condition or is it broad enough to cover similar symptoms but associateed with other diseases?]]> baz99@nospam.com (Barry) Thu, 19 Apr 2007 13:25:32 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* robin.currie@nospam.com (Robin) Wed, 25 Apr 2007 08:54:53 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* AddonChat

The chat rooms are provided by addonchat.com They do a variety of different packages from simple free ones through to the enterprise edition which we use on the Dementia cafe.

It is written in Javascript to make it as compatible as possible with many different browsers and computers and connects to the addonchat servers in the US.

The IT staff at PSS have written the interface to enable it to integrate with the content management system used on this site (which is e107 by the way).
]]> baz99@nospam.com (Barry) Thu, 26 Apr 2007 10:25:40 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* e107

The Content Management System used on this site is the opensource CMS called e107. It is one of the most popular systems used on the web.

A content management system allows non technical people to create dynamic web sites with the minimum of internet development training. It also uses a number of plugins (add on programs) such as the FAQ system to further enhance the operation of the site.

For more information on e107 visit their site. For information on the integration between the chat room and the e107 cms register here and send a PM to Barry]]> baz99@nospam.com (Barry) Thu, 26 Apr 2007 10:31:26 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Neil Hunt, chief executive of the Alzheimers Society says,
'The evidence we are presenting today highlights serious flaws in the process NICE have used. The decision is a blow for millions of people already devasted by Alzheimers disease. We have been left with no choice but to champion the rights of people with dementia and their carers in the high court.'

Campaigners are now waiting for a court date for arguments to be heard.

Should access to dementia drugs be restricted on the NHS?]]> pam.stopforth@nospam.com (Pam S) Fri, 27 Apr 2007 16:33:16 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Scientists in the USA believe that mental stimulation along with drug treatments may help people with dementia, regain some of their lost memories.

For more information: www.news-medical.net/?id=24330

]]> erica.danna@nospam.com (Erica) Mon, 30 Apr 2007 14:03:15 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* I am new to this but I was just wondering if anyone out there has any experience of direct payments. I presently use PSS for 4 hours care a week for my dad. Sadly my LA dont use
PSS. I therefore will have to go down the direct payment route and use the service of my choice. I may also have to employ someone for night time care in the evening. Any info would be gratefully received.
A.]]> halliwellrosie@nospam.com (desperatedan) Thu, 07 Jun 2007 19:01:20 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* Does anybody have any information regarding stair lifts or through celing lifts. My dad has dementia and lives with mum who manages him at the moment. He is becoming more frail and needs help getting up stairs . Ot suggest through floor lift not too sure if this will frighten him as any change in the house disorientates him.
What do you think.
Sarah]]> halliwellrosie@nospam.com (desperatedan) Mon, 13 Aug 2007 17:57:17 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* ]]> ciarayoull@nospam.com (ciaray) Thu, 20 Sep 2007 23:09:32 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* ]]> maybabe6@nospam.com (maybabe) Thu, 17 Jan 2008 15:38:23 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
My name is Peter, I live in Liverpool, and I care for my 60 year old wife Doreen, who was diagnosed with PPA, a form of Fronto Temporal Dementia, in Nov 2002. I just heard this site mentioned on Radio Merseyside today 17th January 2007.

I would welcome any further communication with carers of FTD sufferers in the the Merseyside area, or UK.

Thank you for accepting my registration,

Take care,

Peter Moore.]]> pmnw33496@nospam.com (Pete) Thu, 17 Jan 2008 11:38:24 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* Alzheimer's talking point is hosted by the Alzheimer's Society,and supported by volunteer moderators of which there are 8.
TP was born in March 2003 and is 5 years old on the 3rd of April this year.
TP is an online community for people suffering with dementia and their carers.
Questions can be asked and where possible answers given by others who have experienced problems similar to the questioner.We try to cover 24 hours when ever possible.
There are at present 6776 members from around the world and 729 active members.
I personally have been a carer for 13 + years until my wife died in July 2007 so have gained a great deal of experience about the "Dementia Journey".Which can benifit others.
We hope that you will find time to visit our TP family.
Best wishes in you venture
Norman
]]> nhowell379@nospam.com (norman) Mon, 31 Mar 2008 14:31:13 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* wdfortyplus@nospam.com (wdfortyplus) Thu, 28 Aug 2008 13:42:20 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
maybe some kids' mental games could also be used for dementia? do you know where i can find them?

thanx!


]]> anna@nospam.com (Annoula) Tue, 02 Dec 2008 12:44:40 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* I hope you dont mind me paying you all a visit. I read about the cafe in community care I think a few months ago. I am a health care student and am keen to learn as much as I can about dementia as it is something that I am studying as part of my course. I am also very keen to lean about the perspective of the carer.


Just to let you all know I am a mum and 2 of my children have autisum so for a number of years I have played the part of the carer and can relate in some ways to your situations.
Please excuse my dreadful spelling and grammer I am Dyslexia and have not manage dto get my softwear up and running yet ( on the list of things to do).

I look forward to getting to know you all.
Take care
Vxx

]]> mummy2five@nospam.com (vxx) Fri, 10 Apr 2009 16:16:04 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Welcome to the new look PSS Dementa Centre website!

If you have previously used the website and are looking for the Dementia Café, please click on the Dementia Café logo on the right of the page. From here you will be shown two options:- 'Message Boards', and 'Online Support'.

Clicking on the 'Message Boards' will take you to the forums page where you can post messages and read the information posted by other users.

Clicking on the 'Online Support' will take you to the chat facility where you can 'talk' on-line to other Dementia Centre website users and hosts.

If you are having problems finding your way around the website, or if you have any suggestions for improvement, please post a reply to this message and we'll get back to you as soon as we can. In the meantime, please have a look at the 'Information' section of the website where we have a section containing information on how to use this website.

There are further improvements planned for the website in the coming months, so please check back often to see what we've been doing!

Hope you enjoy the new website and look forward to hearing from you.

Steve - PSS Development Team.

]]> steve.murray@nospam.com (Steve_M) Mon, 18 May 2009 14:06:39 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Welcome to the new look PSS Dementa Centre website!

If you have previously used the website and are looking for the Dementia Café, please click on the Dementia Café logo on the right of the page. From here you will be shown two options:- 'Message Boards', and 'Online Support'.

Clicking on the 'Message Boards' will take you to the forums page where you can post messages and read the information posted by other users.

Clicking on the 'Online Support' will take you to the chat facility where you can 'talk' on-line to other Dementia Centre website users and hosts.

If you are having problems finding your way around the website, or if you have any suggestions for improvement, please post a reply to this message and we'll get back to you as soon as we can. In the meantime, please have a look at the 'Information' section of the website where we have a section containing information on how to use this website.

There are further improvements planned for the website in the coming months, so please check back often to see what we've been doing!

Hope you enjoy the new website and look forward to hearing from you.

Steve - PSS Development Team.

]]> steve.murray@nospam.com (Steve_M) Mon, 18 May 2009 14:08:24 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* WANTED!
People with dementia involved in trying to make a change

The Bradford Dementia Group at Bradford University are looking for 25 people across the UK who are interested in bringing about change or who speak out or campaign on issues which matter to them.

We are looking for a variety of people: it may be that you are involved in community events, or that you write letters to newspapers, sign petitions or speak out in public. Maybe you keep a ‘blog’, have volunteered your skills to get better services or are involved in campaigns on a local or national level.

Whatever your level of involvement, we are interested in finding out why you get involved and how your activities affect you, your family and your life in general. The project will take place from August 2009.

To volunteer you need to
- Have a dementia diagnosis
- Be interested in changing things, speaking out or campaigning
- Be prepared to talk to a researcher
- Be prepared to keep a diary for up to one month; you can keep a written, photo or audio diary - whichever suits you best

We are also looking for 5 people with dementia who are interested in ‘piloting’ the materials we are going to use to make sure we have got them right. The pilot will last 2 weeks and will take place in June 2009.

If you are interested in finding out more please email us on socialchange*bradford.ac.uk (when emailing please change the * for an @. @ sign removed for this posting to stop spam) .
or ring EJ on 01274 236 494 or Ruth on 01274 236 468

]]> socialchange@nospam.com (socialchange) Mon, 18 May 2009 16:46:01 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Just thought I'd give everyone a little bit of info concerning the Assistive Technology Catalogue and where it is on the new website.

If you're looking to download the catalogue of assistive technology products, it can be found by clicking on the 'Information' icon which looks like this, - , but with an orange line around the border. You should then click on the 'Downloads' icon which looks ike this, - , but with an orange line around the border . You will then be shown a list of downloads to choose from. Click on the link for the Assistive Technology Catalogue to download it.

Alternatively, if you are on the 'Home' page, click on the 'Memory Aids' icon which looks like this, - , but with an orange line around the border. You then need to click on the link to download the Assistive Technology Catalogue.

Hope this helps !

Steve.

]]> steve.murray@nospam.com (Steve_M) Tue, 19 May 2009 20:07:12 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
There are a limited number available at the moment but please check back often as we will be releasing new designs all the time. If you have any suggestions, please let us know using the 'Contact Us' link.

We hope you find them useful!
Steve.]]> steve.murray@nospam.com (Steve_M) Tue, 02 Jun 2009 19:49:59 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* I understand that everyone is different when it comes to computers, and although we have tried to include as much information as possible on using the website, there will still be people who need to know more !

If there's some information that you need and you can't find it on the website, please send us an email by clicking on the 'Contact Us' icon in the 'Quick Links' menu. Then click on the email address to send an email, and let us know what you need and we'll do our best to help.

Thanks !

Steve.]]> steve.murray@nospam.com (Steve_M) Tue, 09 Jun 2009 20:56:06 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* In case you haven't noticed......

With the new design of the website, we've also introduced a new service - A Support Line.

The support line is staffed by trained councillors from 7pm - 9pm on Mondays, Wednesdays and Fridays. Outside of these times, there will be a 24-hour answer phone so you can leave a message. The councillors are alerted when a message is left, and will get back to you at the next opportunity.

The Support Line is for everyone, and you don't need to have a problem to call. The councillors would love to hear your GOOD stories in addition to helping with any problems you are having.

For all the details of the Support Line, please click on the picture of the telephone to the left of your screen.

So whatever situation you are in, if you'd like a chat with one of our councillors, please give them a call. The number is - 0800 999 2015.

They're looking forward to talking with you !

Thanks,

Steve.]]> steve.murray@nospam.com (Steve_M) Tue, 09 Jun 2009 21:06:34 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* parrypamela@nospam.com (pam) Wed, 10 Jun 2009 20:12:22 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* emma.benton@nospam.com (emma benton) Sun, 19 Jul 2009 21:51:34 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* How do we reduce long waiting times for diagnosis and treatment to bring it in line with other illnesses?]]> annie.sheds@nospam.com (anne sheds) Sun, 02 Aug 2009 20:21:10 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* caroleforde@nospam.com (carolef) Mon, 17 Aug 2009 17:17:24 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* My aunt is 90 and lives on her own. Her dementia has worsened drastically over the past year, (short term memory and now long term) but is just about able to put a stew together, although she keeps burning the pans. She has no interesty in personal hygeine and spends most of her time in an armchair.
Her son and daughter-in-law (in their 60's) call in once a week for one hour to bring shopping and run a vacuum cleaner round the house. The son also pops in daily for 5 minutes.
I have tried to address the problems she faces with the family, but (and I know this sounds awful) they do not seem to have the intelligence to understand the severity of the situation. I do not feel able to interfere and organise help/support for her, but am obviously very worried. I have Multiple Sclerosis and am finding it difficult to visit her every day, which I do to ease my own concience, because I love this lady dearly.
I would appreciate any advice.
Thank you
Margaret]]> margaretscreen@nospam.com (Margaret) Mon, 24 Aug 2009 19:08:57 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* Karen]]> kwarren@nospam.com (karenw) Fri, 28 Aug 2009 18:00:05 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* in her care home but my wife and I get up to 15 calls a day from her, sometimes at night, when she is very distressed. I am wondering whether there is any medication which might help her.]]> terry.cudbird@nospam.com (Peter) Sat, 29 Aug 2009 16:31:35 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
I discovered this forum while looking up symptoms of Dementia......................! The problem is, Im not sure my Mum has dementia, but the family history suggests that it could well be.

I have tried to talk to my Dad and he dismissed it and said that she's fine. I know my Mum so well, she is or was my best friend in the whole world.

She is 66 years old at the moment. Her oldest sister was 70 when diagnosed and recently passed away. Not from dementia though. My grandma died at 94 having suffered from Dementia for 24 years

I just don't know where to turn. I have just spoken to Mum and she keeps having bouts of depression, but unlike previous low points, her memory is really bad. I suggested that she went to see her favorite GP and she said that she hadn't been to the Doctors for about 2 years......which I know isnt correct. We recently went to a funeral of a famliy friend and when we were leaving she asked me if I had seen the person who had died and said 'Oh I didnt say good bye to Keith'.....! Keith was the deceased.....

I think I have joined this forum to gain a little knowledge about dementia and to contact people who are going throught similar situations.

bye for now
Sarah x

]]> sarah.whitehurst@nospam.com (Worriedaboutmum) Wed, 02 Sep 2009 13:34:57 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* dr.badsha@nospam.com (Kartar Badsha) Wed, 16 Sep 2009 10:37:10 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
I have been consulting as many people as possible and also tried for expert advices in places like
http://www.caring.com/questions/alzheimers-nutrition
I am here for some open ended discussions so I can get more suggestions.

Thanks you]]> sharron.livingston1@nospam.com (sharronlivingst) Mon, 21 Sep 2009 13:30:52 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
I have two sets of forms to fill but it is almost three weeks and despite many attempts am unable to fil.]]> dr.badsha@nospam.com (Kartar Badsha) Mon, 12 Oct 2009 11:26:25 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* marcelle.d@nospam.com (MrsMD) Thu, 12 Nov 2009 22:05:19 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* I just wondered if there is any companies that produce a watch, that you can record a message on, other than one that just speaks the time.
I have searched on the internet but have not had any luck.
Thanks]]> hayleysimmons@nospam.com (tammy) Fri, 27 Nov 2009 13:13:50 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* I just wondered if anyone had any information on companies that sell watches, that you are able to record a message onto other than just the time!!
I have searched on the internet but I am struggling. I need to be able to record a reminder message on.
I appreciate any advice!
Many thanks,
Tammy

]]> hayleysimmons@nospam.com (tammy) Fri, 04 Dec 2009 13:33:51 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
I hope you don’t mind me posting here, but we are running an interesting online pilot community for people who care for those with Dementia. This is nothing to do with sales or marketing – I just thought it might be of interest to some of you.

The aim is to provide an environment for carers to be able to share thoughts and ideas, pick up useful information and debate issues of concern with each other and also with a range of experts. The resource is being supported by Bupa, who provide services for people with dementia and their carers, and it will also help them to improve these services and to help them to represent the interests of people living with dementia, their families and carers more effectively. The community is being run by an independent company called Caucus that builds and manages online communities.

We are looking for around 250 people to join in the community in the first instance, as we have limited space at the moment (although the idea will be to eventually open it up to a much wider audience). We are particularly interested in hearing from those whose relatives are not in care homes, or are in care homes other than Bupa’s, as this is the audience that we would really like to hear from, and with whom we are not currently consulting. The idea is not to take people away from any existing forums or discussion boards that they may be a member of, and actually we would be happy for you to share anything of interest in the Bupa community with anybody here (as long as it is not personal information about other people). It is a free resource that we hope you will find very useful.

If you are interested in joining this community, and you live in the UK, then please click on the following link and complete the short survey.

https://www.surveymonkey.com/s/XPX3H63

The details we collect will only be used to understand what the community demographic profile is like, and we will only ever contact you about the community. Once you have completed the short survey, we will be in touch within a few days to provide you with your login and password. In the case that the community becomes oversubscribed, we will keep a reserve list in the case of any dropout.

If you have any questions or queries, please don’t hesitate to contact me at dementiacarers@caucusworld.com or on 020 7861 3243. I’m a real person and happy to answer any questions!

Thanks
Graham

About Bupa and their work on dementia
To advance Bupa’s commitment to helping people with dementia and their supporters and carers to live well, Bupa and the Alzheimer’s Society have united to improve the lives of people with dementia and officially marked their joint commitment to the shared goal of improving the quality of care for people living with dementia by signing a memorandum of understanding. This partnership offers opportunities to learn, work together on new projects, raise the bar in dementia care and take the vision of living well with dementia forward.

Your privacy
The community is being hosted by an independent research company, Caucus, and for your assurance, at no point will anybody try to sell you anything, nor will your personal details be passed on nor used for any purpose other than understanding what types of people are taking part in the community (this is useful to know when we look at what kinds of things you are telling us about your experiences). Also, you do not need to use your name in the community – you can choose a ‘screen name’ and remain anonymous if you prefer.
]]> dementiacarers@nospam.com (Dementia Carers) Tue, 08 Dec 2009 16:04:37 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* zoe.smith98@nospam.com (smith) Sat, 12 Dec 2009 16:47:48 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
kind regards jacquie]]> jacquienuth@nospam.com (unconditional) Sun, 03 Jan 2010 10:59:44 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
My GP gave me Zyprexa 2.5mg otherwise known as Olanzapine. I gave one to my Mum and it had no effect so the next time she became distressed and agitated I gave her another one. This time the effects were incredible. From a woman who could hardly walk she became one who could march off, take herself to the loo, ban me from helping her saying she wanted privacy. She became very hyper indeed, constant talking and movement. This went on for several hours. her memory came back and she was able to understand a discussion programme on the TV.

Three days later she is still paranoid and somewhat psychoatic as well as the usual dementia behaviour.
I have looked it up on the internet and it is usually used for people with manic depression and bi-polar conditions.

Has anyone else had any problems with this drug? My District Nurse says not to use it again which i will not. Has anyone found a drug that gently calm a demented person down. I do use kalms and passiflora which seem to have some effect.

]]> spikefruit@nospam.com (sallybabs) Fri, 08 Jan 2010 15:44:44 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* l.taylor@nospam.com (gabriel) Wed, 13 Jan 2010 21:30:12 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* i want to know if this is normal as we are now considering what action to take. we have social services involed and are waiting for them to visit on monday before finding out what support they can offer my mother and family in the hope that my aunt can keep her independance.]]> warren.maxine@nospam.com (wazzer) Sat, 16 Jan 2010 21:00:59 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
She suffers from dementia - the main syptom at present seems to be her complete inability to communicate. She may understand (and I think she knows who I am) but has no means of coherently communicating back, so it impossible to know if she understands what is being said to her and, of course, she is unable to say what she wants or requires.

What practical assistance can I give which will help her during these visits?

For example, would it help to take along family photos of when she was younger (with pictures of other members of the family?) Would it be helpful to play games? -if so, which do you suggest?

Any other suggestions would be most welcome!]]> jrlevy@nospam.com (Jeffrey) Sat, 06 Feb 2010 19:55:48 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
My name is Mel Palachandran. I am currently in my final undergraduate year of studying Psychology at the University of Liverpool. As part of my dissertation, I am interested in exploring how the perceptions of carers of Alzheimer’s patients towards healthcare professionals influences the caregiving experience. Therefore, I would like to speak to carers who are willing to share their personal experiences with the healthcare system in the UK and their caregiving experience in general.

The purpose of the study is to identify the difficulties carers currently experience in their role as mediator and advocate for their loved one whilst dealing with the healthcare system. By understanding the nature of this complex interaction and by focusing on ways of strengthening this relationship specifically in the context of Alzheimer’s disease, it may be possible to alleviate feelings of caregiving burden, thereby improving the quality of life of carers and subsequently care-recipients. The findings of the research will hopefully raise the awareness of healthcare professionals to the importance of considering the holistic needs of both patients and their carers, in addition to addressing the more obvious health or behavioural problems.

Participation in the research is completely voluntary and strictly confidential. If you are interested in taking part please contact me for further information.

Miss Palavathani (Mel) Palachandran
Tel: 07545 553601
Email: p.palachandran@student.liverpool.ac.uk
]]> p.palachandran@nospam.com (melaniep88) Wed, 10 Feb 2010 21:16:51 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* My mum has been in a nursing home for the past year. She has dementia. 2 weeks ago she broke her hip, has since had a half hip replacement and is now about to go back to the nursing home. I want to find a new home for her as I'm not happy with the one she currently lives in. Please help!]]> binder4@nospam.com (Maria) Wed, 17 Feb 2010 22:47:02 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
Take care.
kind regards

sheila]]> sheilarobinson_2@nospam.com (sheila robinson) Sun, 07 Mar 2010 13:34:42 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
sheila]]> sheilarobinson_2@nospam.com (sheila robinson) Tue, 09 Mar 2010 21:09:03 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
My name is Mel Palachandran. I am currently in my final undergraduate year of studying Psychology at the University of Liverpool. As part of my dissertation, I am interested in exploring how the perceptions of carers of Alzheimer’s patients towards healthcare professionals influences the caregiving experience. Therefore, I would like to speak to carers who are willing to share their personal experiences with the healthcare system in the UK and their caregiving experience in general.

The purpose of the study is to identify the difficulties carers currently experience in their role as mediator and advocate for their loved one whilst dealing with the healthcare system. By understanding the nature of this complex interaction and by focusing on ways of strengthening this relationship specifically in the context of Alzheimer’s disease, it may be possible to alleviate feelings of caregiving burden, thereby improving the quality of life of carers and subsequently care-recipients. The findings of the research will hopefully raise the awareness of healthcare professionals to the importance of considering the holistic needs of both patients and their carers, in addition to addressing the more obvious health or behavioural problems.

Participation in the research is completely voluntary and strictly confidential. If you are interested in taking part please contact me for further information.

Miss Palavathani (Mel) Palachandran
Tel: 07545 553601
Email: p.palachandran@student.liverpool.ac.uk]]> p.palachandran@nospam.com (melaniep88) Thu, 11 Mar 2010 23:04:39 -0500 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* thefugue@nospam.com (Minimetto) Tue, 01 Jun 2010 13:27:01 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* thefugue@nospam.com (Minimetto) Wed, 02 Jun 2010 19:27:45 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* amit.msspl@nospam.com (amit gupta) Wed, 14 Jul 2010 10:55:55 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?* http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*
]]> carinapieries@nospam.com (carina) Mon, 30 Aug 2010 22:46:19 -0400 http://www.dementiacentre.com/plugins/forum/forum_viewtopic.php?*